Yesterday went well. The docs listened and heard us. I feel far more understood and taken care of. They felt a 25% reduction of the chemo-cleanse adriamycin and cytoxan was warranted, as well as some modifications to the pre-meds for nausea prevention.
So, the infusion went well, too. Claire was my nurse again, which felt very good, and I got more support and advice on how to manage this experience. We even went into the same semi-private room, since to window view was far too bright for my eyes.
Laura had asked Deb, our Nurse Practitioner, during our appointment if getting fluids this morning was an option, and it was agreed upon immediately, so that is where I am now. Back in the infusion center for a liter of saline and breakfast. Laura went down to the cafeteria and brought up breakfast; omelets and gluten- free toast. Thankfully, this time I was able to eat breakfast.
I don’t feel great, low energy and the headache and nausea are lurking in the background. It seems that the slightest stimuli encourages these opportunistic gremlins to leap into action, so prevention seems to be the most important skill-set to develop.
I send you all saline drip
greetings and a gentle hug. My prayer for the next few days is for a gentle recovery that my body is able to manage gracefully. I hope I’ll be up to small walks and sitting outside. We are planning a return visit to Longwood Gardens on our way home today.